Hiya ,
Thanks to both of you :)
Now looking forward to the next NRAS mag :) now i m a member as well as a volunteer :)( though i haven't done much of the volunteering:()
Looking through the pages , i see you are both heavily involved and should be commended for that .
and it is obvious that if you did not know the answer you took the time to research and give people links .Not many people do.
It is all about community whether it be locality , illness or just a desire to make change , and this forum opens up so many possibilities.
On one subject i looked at which i am not happy with is the Healthcare at Home issues...i was affected .. and i got the apology letter , but this is something not in my control....I did not choose to use Healthcare at Home .. it was the choice of my Hospital Trust (Formerly the PCT).
In a consumer contract you have choice ..for example a Telecom supplier ... you choose ..if you don't like it you leave and go to another supplier.This is not possible with this.
With drug supply at this level the contract is with the PCT (formerly), now CCG or Hospital Trust and we have no control over it as patients.( at this level)
this is ridiculous, as is , as Paul points out that there are chargeable calls . Imagine if you can .. you have no money and cannot call to get your vital epi-pen delivery, and you have a choice of nappies or a phone call (that may or may not answer
)
This also leads to options of trying to get drugs from dubious online companies at a premium.
Fair comment that the drugs cost a lot , however i believe the delivery company should be a matter of choice for the patient NOT the CCG/PCT.
I will campaign for this til it happens .
options and choice are the key to a modern day civilised society and i hope you support me in this idea :)
Rich
"The difference between 'involvement' and 'commitment' is like an eggs-and-ham breakfast: the chicken was 'involved' - the pig was 'committed'."
